Vortrag: Thesis on an ethics of genetic testing

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Titel: Thesis on an ethics of genetic testing
Beschreibung: Recent developments in human genetics subvert the possibility of defining central ethical terms in familiar ways: the notion of responsibility, the principles of autonomy, voluntariness and informed consent as well as the relationship between practical problems and ethical theory building need to be rethought. In this paper I try to substantiate this hypothesis and, furthermore, to sketch some consequences following from these arguments. In doing so, I plead for an inductive approach which takes the concrete situation of those affected as a starting point. The event in which the most tangible ethical problems arise in the context of human genetics is genetic testing. Genetic counselling – as required for genetic testing – is a situation in which these problems come to the fore. It is not the self-image of mankind that is negotiated during the counselling conversation, but it is the relation between self and body that is being outlined in its paradox character. At the same time, this paradox becomes the starting point for an alternative notion of responsibility. The notion of responsibility becomes radicalised to the extent to which shaping replaces prevention as a leading concept in the field of human genetics. As a result of such an alternative notion of responsibility, ethical problems are henceforth distributed across networks, structures and organisations. Consequently, a need for an ethics of distributed responsibility can be concluded.
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Typ: Angemeldeter Vortrag
Homepage: http://www.ifz.tugraz.at/index.php/article/articlereview/1150/1/80
Veranstaltung: International Symposium on Genetic Testing (Graz)
Datum: 03.10.2008
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Beteiligte
Wilhelm Berger
Wilhelm.Berger@aau.at
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Fakultät für Sozialwissenschaften
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   andrea.lassnig@aau.at
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