Vortrag: Maintaining Confidentiality of Donors Data: Tools and Procedures

Stammdaten
Titel: Maintaining Confidentiality of Donors Data: Tools and Procedures
Beschreibung: Access to data and biological material stored in biobanks has to satisfy pertinent international, national, institutional and individual requirements, constraints and proscriptions for information access and exchange. Specifically: (1) Legislation imposes data minimization, purpose limitation, data subjects rights, notification and security of processing. (2) Institutional (Biobank) policies typically impose procedural and substantive requirements for access. (3) Data subjects (donors of data and/or biological material) may impose restrictions on type of users or types of use. We present and discuss approaches to support researchers in their search for and use of available data/material for their research projects, taking into account the characteristics of the requestor and his/her project and the requirements, constraints and proscriptions pertaining to the individual biobank. We will present strategies to balance these seemingly conflicting requirements of research needs and the above mentioned limitations. We will show that the consideration of different phases of project planning, project approval and project execution allows maintaining rights and dignity of donors without jeopardizing the legitimate information needs of researchers. For each of these phases we discuss its genuine duties and tasks together with the constraints and goals, and analyze which tools and techniques can be applied.
Schlagworte:
Typ: Vortrag auf Einladung
Homepage: -
Veranstaltung: Joint Congress of ESBB & Spanish National Biobank Network (Granada, Spain)
Datum: 09.11.2012
Vortragsstatus:

Beteiligte
Johann Eder
Johann.Eder@aau.at
Institut für Informatik-Systeme
Forschungsaktivitäten
zur Visitenkarte
(intern)
  • Vortragende/r

Zuordnung
Organisation Adresse
Fakultät für Technische Wissenschaften
  Institut für Informatik-Systeme
Universitätsstr. 65-67
A-9020 Klagenfurt
Österreich
  -993503
   kerstin.smounig@aau.at
https://www.aau.at/isys/
zur Organisation
Universitätsstr. 65-67
AT - A-9020  Klagenfurt

Kategorisierung
Sachgebiete
  • 1108 - Informatik
Forschungscluster Kein Forschungscluster ausgewählt
Vortragsfokus
  • Science to Science (Qualitätsindikator: n.a.)
Klassifikationsraster der zugeordneten Organisationseinheiten:
TeilnehmerInnenkreis
  • Überwiegend international
Publiziert?
  • Ja
Keynote-Speaker
  • Nein
Arbeitsgruppen
  • Information and Communication Systems (ICS)

Kooperationen
Keine Partnerorganisation ausgewählt